'My daughter has Devic’s Disease'
My daughter is 41 years old.
For years she vomited every
day (I saw that this happened to one of the people that shared their
story).
She went blind twice in the
same eye (the first time she gained all her sight back, but the second
time only part of her sight back).
She has had back problems for
years and was told she had a bad back. She has had to do physical therapy
for her back from time to time. This is how she discovered that she
has Devic’s disease.
On 9/15/09, she made an appointment
to see her doctor and for physical therapy. 9/17/09 she went to work and
when she went out at lunch time her knee gave way and she had to have
help getting back to her office. That night she went to the hospital,
they gave her medication and sent her home.
The next day she could not walk
because of the pain; had to call an ambulance to take her back to the hospital.
This young doctor took an MRI and
found lesions on her spine (T4 & T5) and said she needed to be transported
to a hospital in Boston because they were not able to give her the care
she needed. (Thank God for this young doctor).
There they found there were
also lesions on her brain.
She is now in rehab; can move
her big toe and has a little feeling in her leg.
She's now taking vitamins, and
is on more of a fruit, green vegetable and fish diet.
She is taking Nourontin, Vitamin
D & calcium and not sure if she's still on Baclofen & Gabapentin.
She has become diabetic and is on insulin. They said this happened because
of the medication she's taking. But I found out that her grandmother
and aunt on her father's side had diabetes.
I’m still learning about
the disease. I realize each case is different, but would like to know
if recovery happens (able to walk again with or without support). I
would like to hear from people - what was the time of relapsing occurring.
There needs to be as much information as possible about this little known disease.